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Now in 3rd grade, Curtis will soon be expected to move on from the only ed tech he has ever known to help guide him though the school day.

Curtis and I started our closure processes last Friday. His growth this year and his ability to tap into every tool that we (as a support team) have instilled in him over the past few years has been very evident. I have said since day one that my goal with Curtis was to, eventually, work myself out of a job. Over the past 3 and a half years I have acted as a mirror for him, so that in an environment where he doesn’t exactly feel comfortable or know “what to do” he can look at me, model, learn and eventually live the behavior that is desirable.

We are at the point in our working relationship where continued growth will happen by being set “free” and exploring every tool he has learned to confront his fears.   I told him last Friday in the afternoon.  We packed up his school bag and said goodbye to his class an hour early. I told him that we were going to go for an old school walk – on the train tracks behind the school like we use to when he was younger and needed more running time and space from the chaos of a school environment..

I did inform one of his best friends in the room of this news earlier in the day so that when we did leave the classroom, he could give Curtis a big hug to (unbeknown to Curtis) make him feel good – to feel connected before the big news dropped. The look in his friends eyes as he was saying goodbye to Curtis for the weekend (knowing the news that I was about to share) spoke of the love and loyalty he has for Curtis. His friends, more then anyone, have made me feel the best about my decision to move on. They are ready to pick up right where up where I will leave off.

We made a stop by my car to grab the half dozen eggs that I brought, thinking he might want to chuck a few at a tree after he hears the news that Ms Barber was going on to another job. We stopped at a bench once we got to the trail and I told him that I had something important to tell him. I started by sharing some “remember when you when you first got to Presumpscot” stories to paint the picture of what he looked and acted like when I first meet him at school - timid, mute, anxious, confused, isolated and unpredictable. I then began to share a reminder of what my job was and is now – and how even that looks different because of how much growth he has undergone.

I told him that it was job to make him feel safe, secure, and comfortable at school so that he can learn.

And learning he has done – he has advance skills in math, reading, and writing.

I also mentioned how my job was to help him make friends and find the good (or the humor) in all those around us; he also has surpassed what his support thought was possible in this area. He has a very diverse school filled with friends of all ages and backgrounds that give him high fives daily, and some special ones that get the hugs. I finally told him that it is now my job to let him go when he was ready – and he may not be able to see it, but I can and it makes those around him very proud and happy and excited about the future.   

His first reaction was backing away from me and saying over and over again, “You’re joking Ms Barber – right? Say you’re joking. Don’t kid with me. Are you lying? ” He then wanted to know if  I didn’t like him anymore and wondering why I was quitting on him and quitting on my job. And his final verbal reaction was telling me that I wont like my job and I will be back working with him by April.

His nonverbal reaction was shredding leaves on the ground and tearing his snack bag with fury in his rambling and in his body language. Before we started to process all these thoughts on our walk, I wanted him to start throwing eggs. I did the first one to model – I threw an egg at a tree while also letting out my verbal feeling, “I am so nervous about this change!”  He then stepped up to the tree, nailing it smack in the middle with an egg saying, “I’m so angry at you Ms Barber!”

It will be the most important job I face over the next three weeks to work through every feeling he has around this transition and to help him into a more clear space. I gave the school a month notice so that I had plenty of time to honor all of these first reactions and leave him in a place where his skin is a bit thicker, he feels brave as an individual and is ready for the new support to come in - or at least ready to fake it.  He will continue to have full support in the classroom.  But it is my belief that, b/c Curtis is an out of sight, out of mind sorta guy, he will step up to the plate when I'm gone.

I have a feeling that he will come into himself as a individual more through this change and lean more from his friends. This ultimately has been my job all along -  to show him the joy of true connection and through this transition he will find his true connection to himself and to his peers.

Caron, 1:1 School Support

 
 
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As I've stated before, I do a lot of my autism research based on what comes up on Linkedin. It's just that much easier when things show up in your inbox. There is a string that has gone around for a month or so where experienced parents of kids on the autism spectrum offer advice to parents of newly diagnosed children and information on autism. Below are some highlights from the string.


Karen Sudom Breathe. Autism lasts a lifetime. You don't need to read everything and try everything to be a good parent. Your child is the same today as he/she was before diagnosis. I think approaching parenting as a journey takes away the panic that I've missed my chance if it isn't all perfect today.

*Debi Taylor Start by learning about how your child sees the world so you can learn that most issues are not chosen behaviors, rather sensory or avoidance survival tactics from overwhelm. Once you start seeing things from their eyes the best you can, you can start making decisions that best support your child. 

*Susan Gurry, Ed.D., BCBA-D; Play therapist • Take your time, do your research, and decide what is best for you and your family. Some kids do recover, but the 'how' and 'why' are not proven. There is so much heterogeneity in the autism spectrum that anyone who tells you that their method works on everyone is not telling the truth. What's clear from the research is that intensive early intervention is extremely valuable....but the evidence about whether it has to be all ABA or any other intensive (40 hours/week) intervention is not clear.
And everyone is going to want to sell you something: pills, vitamins, toys, CD's, reading programs, squeeze machines, flashcards....be careful and thoughtful about what you buy. 

I think the most productive use of your time is to stay engaged with the child...play with what he likes, have him eat one bite of non-preferred food before his preferred food, stay in his 'face'. 


*Renee' Barbier-Brown Autism isn't mental illness... each child is completely in tact. I read quite a bit in the early days... I read the most recommended books... Tony Atwood etc... I got involved with Easter Seals right away... they really helped because they were able to give us additional test and help us get along as a whole family. They helped us all grow in a great way. I slowly learned how to parent autism much better.

Jaye Reckers • Read as much as you can without going on total overload and remember that at the end of the day, no one will ever know your child better than you. Don't be bullied into something you don't believe in and ask for help when you need it. 

Carla Cummings • You never know what the future will hold. Your child will develop in their own, idiosyncratic way so no one can really predict how they will be functioning when thay are adults. Also, PLAY WITH YOUR CHILD! Board games are wonderful teachers. Join them in their interests and they may eventually join you in your world. And last... NORMAL IS OVERRATED -- noone ever changed the world by being normal and average!

Cinder McDonald OK, new parents, your kid is never going to be "like you". The things you get to brag about your kid doing will be markedly different from the things other parents get to brag about their kids doing. Your kid will have a lot of ups and downs, with more downs than ups. But your kid is amazing. Your kid will show you a world that you never knew existed. You will see wonder in the most ordinary things. You will never take a hug for granted. If you work very, very hard and battle with systems that act like they hate you, your child will grow into an adult who will surprise you with all they are able to do.

Jennifer Lee  Being a newly diagnosed parent - I have to say, remember there is always hope. I believe that if we could not handle this it would not have been put in front of us. The best advice I have gotten from anyone is "I am the only one who is going to advocate for my child and always follow my gut." It's not the end of the world, they are still your wonderful child, you can still have expectations and dreams for them. I plan to do whatever it takes to make sure my son has the best life possible, the same thought I had before we knew about the Autism.



Greg, Dad